Tuesday, December 23, 2008

Simone and Winter update Dec 2008

The wee ones are growing like weeds—so much so that we had to start them on baby cereal (see big sister helping feed them below) a little before I had planned (after the craziness of the holidays). Hungry little buggers.

Both are fashioning a regular schedule for us, which is nice now they sleep longer at night (cross your fingers -- they did 12 hours for the past four nights -- lets hope it sticks) and are more aware and playful during the day.

They had a check up a couple weeks ago and passed with flying colors. Winter is almost a whopping 20 lbs and Simone is almost 17. They should be rolling over and grabbing their feet soon. I am guessing Simone will do it first. Winter has alot of bulk to heft around, so he might be mobile a bit later then his more dainty twin sister. I would guess that Winter may talk first because he is much more vocal, at least so far. Simmers smiles at everthing, while Winter is a tough crowd. Congrats to anyone who can get him to chuckle. Hazel wins the prize lately.

Both babies are a joy to be around and, knock on wood, are easy to console. Winter's reflux seems to be fading, but not the spit up that comes along with it! His new nick name is Spitty! Look out Pop Pop!

We had a visit from my brother, Dustin, his wife, Nina, and their two boys, Riley and Fletcher for week in early December. I was bummed we were not able to produce a snowy visit for the clan from LA. Next time. My dad, Paul (aka Pop Pop) and Alice (Grammie Alice) came down as well for the visit. It was the first time this part of the family met the twins. It was very nice to have extra hands around. They sure did get spoiled with all the holding!

My dad just retired. I have not met another person who deserves it more. I dont have to tell him to enjoy it because I know he will.





Some Holiday photos





Sunday, November 30, 2008

Tuesday, November 11, 2008

Second Homecoming

Simone came home last night and Winter is coming home today, YAY!

Monday, November 10, 2008

Simmers has been released!

Simone was released today and Winter will probably be sent home tomorrow. Keep your fingers crossed! They are over the virus for the most part except Winter's oxygen level drops a little too low when he is in a deep sleep, so they want to watch him for one more night.

Daniel will stay overnight with Winter while I will be home for a girls-only night painting finger nails and having pillow fights.

Now Simone has TWO reasons to tease her big brother (by 45 seconds) when they grow up -- she was released from the hospital before her bro twice!

Sunday, November 9, 2008

Update

We have a hopefull ETA of tomorrow for the twins' discharge, we'll see.  Simone is pretty much a lock, we're about 75% certain Winter will come home as well.  Cross your fingers!  

Saturday, November 8, 2008

RSV update

The twins are still at CHOP. Daniel stayed with them last night. They are still progressing well. Simone no longer needs oxygen and is on room air starting 4am this morning. Winter's oxygen needs have gone down little by little. As of this morning he is on 1 liter (down from 2). Go Fraleys!

Winter's nurse's name is Simone!

Friday, November 7, 2008

Still at CHOP

The twins are still at CHOP, but on the mend. They are in good spirits, smiling, eating, tooting, peeing, and pooping. Their lungs are still congested but are comfortable with oxygen help. The goal is to wean them off the oxygen little by little. Once they spend one night oxygen-free, they can come home. The staff at CHOP is absolutely amazing. Its comforting knowing they are in the best children's hospital in the country. Everything is taken care of for the parents, including room service meals, only $5 for any meal on the menu!

I found out that we were lucky to have them in the same room because their unit is full. I cannot imagine how stressful it would be to run back and forth between rooms! Whew!

I stayed the last two nights and Daniel is going to stay with them tonight so I can spend some time with Hazel, whom I have not seen since Wednesday. My mom (Nana) has given me breaks and spent time during the day with them. When I left this morning, she was giving them baths. Squeaky clean babes.

Cross your fingers we will all be back home in the next couple days.

Thursday, November 6, 2008

Twins back in the Hospital...

The twins have a nasty case of RSV, cold like symptoms to you and me, but more serious in an infant. They'll be in the hospital for at least two days on oxygen, likely longer until the chest congestion clears. I saw them both last night and they are fine, eating well, just congested.

Monday, November 3, 2008

Halloween 2008




What do infant twins & Friendly's Restaurant have in common?



Now that I have established some sort of routine with the wee ones, I have come to embrace the challenge of caring for twins, one preschooler, and trying to keep a tidy house (notice I did not say clean). I came to the conclusion that it reminded me of waiting tables at a busy Friendly's in my late teens. I truly enjoyed being a server. Juggling a bunch of tables, troubleshooting problems, thinking one or two steps ahead, keeping customers happy, using diplomacy when one of those customers were not happy, cleaning up, and restocking -- all at the same exact time. After sharing this analogy with Daniel I realized that there is one big difference between the two: When you wait tables you get to go home after your shift AND you get to go home with a big wad of cashola in your pocket.

Tuesday, October 21, 2008

Can you believe I'm 34 and have 3 kids?

Hello World

Papaw and MeMe visit from Chattanooga


Our little unicorn




Perhaps you wondering how the Fraleys can produce not only one of the most beautiful babies ever seen by human eyes, but one of the only cherubs gifted with mystic powers only given to unicorns?

The only sign us mere mortals have of knowing this fact is the red-crested bump precisely placed on the top of her head, right above her butter-soft forehead. Oh, and the sweet smell of strawberries that wafts around her.

The sterile, impersonal medical industry calls a bump like this a hemangioma.

The scoop:
Hemangiomas appear in the first weeks of life. They are connected to the circulatory system and filled with blood. They then become a flat red patch often with blood vessels you can see. If they are on the skin surface they can look like a strawberry. If they are deeper in the skin they look like a bluish lump. Sometimes they have both a surface and a deep part. Hemangiomas can also grow on the internal organs. These behave in the same way as those on the skin.

Hemangiomas grow fast in the first few months then slow down in the second six months of life. Sometimes they keep growing after the child's first birthday. When they have stopped growing , they tend to stay the same size for a while then start to disappear. Some will go away completely while others will leave behind a soft fatty lump. It is variable how quickly they disappear. Some have nearly gone by 3 years, while a small number (less than 1 in 10) are still there up to 8 or 9 years old.

Usually, hemangiomas do not cause any problems. Most hemangiomas disappear by themselves and do not need any treatment.


Thursday, October 9, 2008

Monitor Update

Ding dong the monitor is gone, the monitor is gone! Winter was "episode" free last month so we can finally disconnect him from the machine. Yay!

The twins got their first seasonal cold this week, poor guys...

Wednesday, October 1, 2008

Big Sis

All clean!





Some cute photos of the wee ones right after their baths in the kitchen sink. Winter is now 13 lbs and Simone is 12. Getting chubby!

Monday, September 22, 2008

Incommunicado for most of August -- here's why.

Friends & Family,

As you may or may not know, that I was not here in late July and most of August. When I say HERE, I mean Heide Joy Fraley was not mentally on this planet. Kaput. La la land. In orbit. In bed. Unshowered. Crying. Sobbing. Wringing my hands. Rocking back and forth. Hyperventalating. Unable to do anything but sit and stare at a spot on the wall. Or the clock tick tick tick. If I was not sitting, I was pacing, or dry heaving. Looking at food made me nauseous.

I was suffering from an acute bout of Post Partum Depression. I think I am over it for the most part, but for while there my hormones did a number on me.

When Hazel was born in 2004, I definitely suffered from a couple weeks of the "Baby Blues," but my second time around was different. Not only did I have two babies this time, but they came ten weeks early and had to spend time in the NICU. One was home and one was still in the hospital. Winter was to come home with a apnea monitor that beeps all the time. I thought I had accepted the fact that my life will be VERY different with two more, but I had fooled myself. As time passed while they were in the NICU, my anxiety built and built trying to figure out how am I going to care for two newborns and a three your old. How would feeding work? What are the logistics of getting in and out of the minivan? How can I do simple things like pick up some groceries? How can I take Hazel into her school with two babies in the car with me? Can I survive the oncoming sleep deprivation? I started wishing I had a huge rewind button so I can go back to my old life.

I was pumping breastmilk every three hours around the clock from the time they were born. I had every intention of breastfeeding them when they came home. Then I realized that, as with Hazel, I was not producing enough for even one baby. I did everything I could to increase my production, including taking prescription medication, to no avail. Once Simone came home after 30 some days, I started to come to the conclusion that trying to breastfeed two babies, continue pumping (to keep production as high as possible), and supplement with formula was too daunting a task for me. The decision was made, I would stop breastfeeding and only formula feed. This way, Daniel, friends, and family can also help feed them. Plus, Winter was put in a special formula to help control is reflux. So after six weeks of giving them the liquid gold, I put my nursing bras and breast pump away in the closet. It was one of the happiest and saddest decisions I have made as a parent.

Now with the mix of post-partum hormones, the drop of hormones associated with breastfeeding, the increasing anxiety I felt with one baby home and one still in the hospital, my mind and body literally got sick.

My mom and the fabulous nurses in the NICU saw the signs and rallied around me. At Pennsylvania Hospital's NICU, I met with the most amazing social worker (I love you, Debbie!) who sat with me for what seemed like hours as I mentally imploded while holding Winter in my arms. She assured me over and over again that it will not last forever and to do the following things: make plans for family to take full care of Simone for the time being, get at least four nights of uninterrupted sleep, hire a nurse to do a couple overnights with Simone, get on anti-depression medication, make an appointment to see a therapist, and force myself to get sun (vitamin D) and take walks, even if its the last thing I feel like doing.

I felt better once I learned what I was experiencing was "classic" post-partum depression and that if I take action, I will feel a little better each day. The rub was that anti-depression medication takes two or three weeks to kick in. Sometimes up to six weeks. I started my daily countdown. No, I started counting the hours.

In the meantime, I was in email contact with a new friend I had made at the SJMOMs club (South Jersey Moms of Multiples). Lisa has two-year-old triplets and noticed the PPD signs I was experiencing just by reading my email messages to her. She was the first one to help me realize I was not alone and that I should get on meds asap. Thank you, Lisa! She mentioned she had waited too long when having symptoms and regretted not taking action sooner.

While my mind checked out, Daniel and my mom took charge. I could not have managed without them. It was so comforting knowing I could lean on my mom for the slightest thing and everything would be ok. I could tell Daniel did not recognize his wife (I did not recognize myself!) but teamed up with my mom and my in-laws to make sure Simone and Hazel got the care they needed. Each evening I would see a glimpse of my normal self and we would sit at the dining room table and count our blessings that I had at least an hour or two of energy and normalcy. It was scary knowing that once my head hit the pillow, it would start all over again. Insomnia (another cruel joke!) and racing thoughts would fill my nights. I started to understand why some people turn to drugs to escape their life.

I wanted out. I wanted to escape my life. I felt like a prisoner in my own home. The future looked bleak stuck in the house with three kids and no adult interaction. I saw no pleasure in the new chapter of life that was dealt me. I remember I had read about a woman who suffered from PPD and she could not even look or care for her baby for a month. I was determined not to let myself get that bad. I knew that you could become suicidal, but luckily, I was not heading in that direction.

I finally found a therapist that specialized in PPD and also took my insurance (not an easy task). After an hour with her I felt much better. Many of the things she told me were things that Daniel had said or I already knew, but coming from an outsider, it really hit home. I asked her if my symptoms were normal. She said I had "text book" PPD. Whew! At least I was not alone and my diagnosis was "defined."

My second visit with her really helped me snap out of it more. We came to the realization that I needed to mourn the loss of my old life and embrace the new chapter in front of me. This fact I knew, but all along I was denying and rejecting the notion. Ok. There was no going back. Suck it up and embrace my new babies and family. I am a strong woman and I can do anything. Right?

So now I am 90% back to my old self and I feel a little like a surviver. Each day did get better and I do find pleasure in taking care of my beautiful and healthy children. I wake up each morning counting my blessings that each tick of the clock is not a living hell and that I actually want to get out of bed and get the day started. Praise the heavens.

Up until this week I did not think it was relevant to let everyone know what I am going through until I realized that part of the problem of PPD is the unecessary suffering some women go through because they do not take action to get care early on. One reason this happens is because PPD carries a social stigma along with it. Having a baby (or babies) is suppoed to be the most glorious time of your life. The media makes sure we feel this way. If its not easy and wonderful, then you must not be cut out for being a mother, right?

I decided to not contribute to the stigma of PPD and stay silent. Its a real syndrome and a cruel joke on the mind and body. Its debilitating. It happens at a time when your baby (or babies) need you most. Nature's cruel, cruel joke, I say.

I would like to thank everyone who supported me during my crisis, especially Daniel and my mom. Thank you to my in-laws Suzanne, Steve, Leon, and Rhonda for their unjudgemental support. Thanks to my dear friend, Danna, for delving into the depths of my rattled mind, helping me understand it was not really "me," for the walks, and luxurious bubble bath. Jess, thanks for your practical insight and neighborhood walks. There were so many other friends and family who jumped at the chance to offer support and kind words that I cannot thank everyone here on the blog, but you know who you are.

I do have one last thank you. Its for my dear daughter, Hazel. While I was trying to hide my tears from her when she was around, she did notice that I was not myself. She offered the most fabulous words of wisdom that really hit home. She had no idea that she was offering them at the time, but somehow she said the right things at the right time. She was my rock, a constant in my daily life. I knew what to expect from her and I was able to experience a piece of my original self when she was a around. Thank you, Sugar Plum.

Wednesday, September 17, 2008

Winter's monitor FYI




For those of you who were wondering about the "box" attached to our dear son, here are some photos of it. It monitors his heart rate and breathing. If he pauses breathing for more than 20 seconds, it will beep. If his heart rate goes too high or too low, it will beep. If the sticky leads come unstuck from his chest, then it beeps. We have gotten used to having it. Its not so easy to just pick him up and carry him around the house like we can with Simone. But soon enough (one or two months) we can say goodbye to his leash and he will be free. It will be a bittersweet day because it is very comforting to have, knowing it will warn us if he has an apnea (lung) or bradycardia (heart) episode.

Finally a photo update for you

Sorry it took so long to update. Here are some random images of the twins taken this month.
Love the double chin (above)

Sunday, August 24, 2008

Thursday, August 21, 2008

Happy Birthday!

Today was the original due date for the twins, happy birthday, sort of...

Thursday, August 14, 2008

New Photos
















Click to enlarge:










Friday, August 8, 2008

Winter in the middle of Summer

Winter is H-O-M-E!! Finally... All is well, he'll be on a monitor for the next month though. Thanks to all for the kind words and support.


Wednesday, August 6, 2008

Still no Winter

3-5 days we're told, 3-5 days... We've been disappointed before.

Friday, August 1, 2008

Week 37, Complete

Week 37 is considered "full term" for twins, it's hard to believe Simone & Winter were born 7 weeks ago Thursday. Winter is doing well, flush with new blood and weighing in at 7 lbs 2 oz. The nurses are giving us a soft date of next Tuesday for his discharge. Come on Winter!

Thursday, July 31, 2008

Transfusion Today


The Doctor's have finally decided to give Winter a transfusion today. Hopefully this will do the trick.
Mom is having a rough patch right now, any supportive calls to her would be welcome.

Saturday, July 26, 2008

Simone's Homecoming, Winter Delayed

Last Friday was Simone's homecoming. Below is Hazel's first contact, she was so excited. Above is Simone's first bath at home.

Winter was SUPPOSED to come home yesterday but had an "episode" in the morning that required nurse intervention. Now they are saying Tuesday or Wednesday for a possible homecoming. He'll likely come home on an apnea monitor and we'll have nurses visiting periodically. Seems like overkill to me but better safe than sorry I guess.